Aussie support for those with Ehlers-Danlos Syndrome and their families
This group is for Aussies who have Ehlers-Danlos Syndrome and their families, a place for support, information, compassion and understanding
Thanks for granting me access - I'm around 60 and just a little bit crippled from things that would have been great to have treated as a young kid. By treated I guess I mean given notice that I…Continue
I have a rare type of Ehlers Danlos that is crossed over with Marfan Syndrome. I suffer from many dislocations a day and have had multiple surgeries to stabilise joints along with Physio. In the past…Continue
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Sign up to chat on EDSAUS - Ehlers Danlos Syndrome Support in Australia.