Aussie support for those with Ehlers-Danlos Syndrome and their families
This group is for Aussies who have Ehlers-Danlos Syndrome and their families, a place for support, information, compassion and understanding
I have a rare type of Ehlers Danlos that is crossed over with Marfan Syndrome. I suffer from many dislocations a day and have had multiple surgeries to stabilise joints along with Physio. In the past…Continue
Hello lovely people, i'm looking for information on specialists who manage EDS (doctors, OTs and physios) in Sydney. I've been seen by the CTD clinic at westmead and the narrabeen sports clinic is…Continue
Thanks for granting me access - I'm around 60 and just a little bit crippled from things that would have been great to have treated as a young kid. By treated I guess I mean given notice that I…Continue
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