EDSAUS - Ehlers Danlos Syndrome Support in Australia
Aussie support for those with Ehlers-Danlos Syndrome and their families
This group is for Aussies who have Ehlers-Danlos Syndrome and their families, a place for support, information, compassion and understanding
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EDS'ers in Adelaide
Started by Jo Hargreaves. Last reply by Katie 1 hour ago. 18 Replies 0 Likes
For those of us living in Adelaide, just wondering if there is a face to face support group, or would anybody be interested in joining me in a 'real' meeting over coffee :-)Continue
EDS & PREGNANCY
Started by Sheldon. Last reply by Niamh 1 hour ago. 20 Replies 0 Likes
Ive only been diagnosed with EDS TYPE 3 (HYPERMOBILITY) in the past year so i am new and still learning about all the different ways it can affect my body.my biggest fear at the moment is that last…Continue
Tags: 3, Motherhood, TYPE, EDS, Miscarriage
EDS meeting in Melbourne
Started by Barb Monaghan. Last reply by Barb Monaghan 6 hours ago. 5 Replies 0 Likes
just thought I would jump on the South Aussies band wagon. Any thoughts on us Vics catching up somewhere /somehow?????Continue
please read
Started by Rachael Thomas. Last reply by Barb Monaghan 6 hours ago. 15 Replies 0 Likes
hi everyone, it's Rachael. If you don't know me, you won't get to because I'm saying goodbye. I hope you all have good lives. ByeContinue
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Katie replied to Jo Hargreaves's discussion 'EDS'ers in Adelaide'
Thankyou!! I'm really excited. May i ask what type of EDS you all have? :)
Niamh replied to Sheldon's discussion 'EDS & PREGNANCY'
your family photo is gorgeous Lyn!
Carolyn Morgan replied to Sheldon's discussion 'EDS & PREGNANCY'
I have EDS Classic type. I have been pregnant 10 times. I have 5 beautiful children and I have lost 4 as miscarriages and 1 as a stillbirth at 20 weeks. The 50/50 prediction was accurate with me.
My joints became extra sloppy…
Barb Monaghan replied to Barb Monaghan's discussion 'EDS meeting in Melbourne'
Where abouts are you Itigo and you may set the date if that helps
jacqui peet replied to Barb Monaghan's discussion 'EDS meeting in Melbourne'
I am in the Mansfield area,and would also really like to meet and compare notes etc.I have not actively participatedin forum discussions,but my family is in the process of setting up geneticist appts.,as the evidence is there that there is EDS come…
Barb Monaghan replied to Rachael Thomas's discussion 'please read'
Lucas I think you may be the tonic she needs... Hopefully this will be a realization that she wasn't meant to leave us yet. She has an on line care group that wants to support and help. Please pass on all our love hugs prayers and wishes…
cathy replied to Rachael Thomas's discussion 'please read'
Thanks Lucas.We were very concerned about Rachael's welfare.It was kind of you to let us know what's happening as we all really do care..very much so
Kathy and Lucy replied to Rachael Thomas's discussion 'please read'
Hi Lucas, thanks for updating us all on how Rachael is doing. Please let her know that many people have been thinking and praying for her and hoping that she can get through this terrible time in her life.
Carolyn Morgan updated their profile
Carolyn Morgan is now a member of EDSAUS - Ehlers Danlos Syndrome Support in Australia
Roomcmoo replied to Rachael Thomas's discussion 'please read'
Thank you Lucas. :/ hope she'll fight through and get to know a strength within her that she didn't know she had.
kjwilkin replied to Rachael Thomas's discussion 'please read'
Thanks for the update, Lucas. Been thinking of her a lot and been very concerned about her.
Kylie Lang replied to Rachael Thomas's discussion 'please read'
Hi Lucas - thank you so much for the update...we have been so so worried for her...we did all we could to help - could you please pass on our love and best wishes and let her know she has somewhere to come to xx
Rachael Thomas replied to Rachael Thomas's discussion 'please read'
This isn't Rachael. I am just a friend. I'm just letting you know she's currently in hospital in ICU. She had to have ambulance resuscitate her on her bedrooms floor. You proberly didn't want to know that but she'll be…
Sheldon replied to Sheldon's discussion 'EDS & PREGNANCY'
The main thing I needed to hear was that it was possible, so thankyou all. the decision as to whether or not to have children in general will be a very hard one, but i believe i one day will. I am only young & have very…
Leanne replied to Jo Hargreaves's discussion 'EDS'ers in Adelaide'
Hi Katie, you are more than welcome. Looking forward to meeting you too.
Barb Monaghan replied to Barb Monaghan's discussion 'EDS meeting in Melbourne'
I am in South Gippsland it is o nly an hour to the city so that is fine with me
Katie left a comment for Louise Ihlein
Oh had a thought! I think it was during a nursing prac that i found out about it but there's a program on the computer which you can talk to and it will type what you're saying. Perhaps this could be a good option when your hands are…
Katie left a comment for Louise Ihlein
Hi Louise,
Great to meet you!! I really hope your sister is doing okay, do you have EDS?
In regards to your work i'm really glad you've found something that you can do! Are you enjoying it?
I really wanted to contact you in…
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