EDSAUS - Ehlers Danlos Syndrome Support in Australia

Aussie support for those with Ehlers-Danlos Syndrome and their families

This group is for Aussies who have Ehlers-Danlos Syndrome and their families, a place for support, information, compassion and understanding


radiation for EDS sufferers.,

Started by Gwendolen Betty Judge Aug 18. 0 Replies

 I have cancer of the vulva and  have been advised to have 35 days  (Monday - Friday for 7 weeks) of radiation.Has anyone  with EDS ever had this treatment as I don't know how it will affect my skin,…Continue

OT recommendation in Perth

Started by Katie. Last reply by M S May 5. 4 Replies

Hi all,Does anyone know of a good OT in Perth? I'm having some issues with my fingers and hands, and remember reading about finger splints. Not sure if I could tolerate them... but it would be good…Continue

Help for those with sore or dislocating hands :)

Started by Grace. Last reply by Grace Mar 16. 4 Replies

Hi everyone,I stumbled upon a product a little while ago for holding my phone in my hand better and that I hope can help some others! I frequently dislocate my fingers and wrists, I've now got…Continue

Hervey Bay - local GP? Recommendations?

Started by Jenny C. Last reply by Jenny C Mar 15. 2 Replies

Hi all, I'm moving to Hervey Bay shortly and am wondering if there are any other edsers up that way and if so are there any eds aware GPs you could recommend in the area? Many thanks. Jenny.




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Mark posted a status
"NDIS?? Is there anything the NDIS offers for someone with EDS? I understand you can access some services but wondering if anyone has."


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