Hi,I hope everyone is keeping safe and well in these difficult times. :)I was wondering whether there is another website for EDS support in Australia at the moment? This site has been a little quiet recently, and I was thinking perhaps EDS-AUS has moved to a different online location. Any updates?Also, does anyone know the contact address/P.O. Box for EDS-AUS? I'm currently working on a support network project with the GSNV, and cannot seem to find a physical address listed. Any information…See More

I have ehlers danlos classical and have noticed a sudden loss of long sight in my left eye. The left eye is now very blurry and i am now needing to wear glasses. I have seen an ophthalmologist who has ruled out anything obvious but i am concerned it could be related to my ehlers danlos. The ophthalmologist was not a student of ehlers danlos and was not helpful at all. Am also wondering if it could be related to impinged nerve in the cervical base of the neck caused by my flaccid neck muscles. …See More

Has anyone managed to find a GP or specialist in Brisbane or Qld even who will actually prescribe either Tramadol or Palexia? Both work well for me but I get the "you're an addict, hypochondriac, neurotic, malingerer" routine 99% of time. Moral indignation x 100!NSAID'S work but have hiatus hernia due to EDS/HM and 2 -3 bowel movements / day despite FODMAP diet. Trying turmeric but not sure it has any benefit over ibuprofen. Cutting out dairy, gluten, caffeine helped. Have cheese, yoghurt,…See More