Aussie support for those with Ehlers-Danlos Syndrome and their families
This group is for Aussies who have Ehlers-Danlos Syndrome and their families, a place for support, information, compassion and understanding
Has anyone managed to find a GP or specialist in Brisbane or Qld even who will actually prescribe either Tramadol or Palexia? Both work well for me but I get the "you're an addict, hypochondriac,…Continue
Hi there. It took 10 years to get my daughter diagnosed with EDS by a geneticist. Apart from the constant pain and subluxations she is starting to get bladder and heart issues. Do you have any…Continue
Hi has anyone experienced with their EDS their voice box closing over and limiting airflow into lungs.I found this out as I was admitted to hospital coughing up blood. And as not all Dr's are versed…Continue
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