EDSAUS - Ehlers Danlos Syndrome Support in Australia

Aussie support for those with Ehlers-Danlos Syndrome and their families

This group is for Aussies who have Ehlers-Danlos Syndrome and their families, a place for support, information, compassion and understanding

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I have EDS type 3 hypermobility can i have kids ??

Started by Timothy Nov 16. 0 Replies

I am a man and I have been giving this a lot of thought and started wondering if i will be able to have kids and also is there a test to see if i can i would just like to know thanks in advance for…Continue

Pregnancy how did you cope????

Started by Tonii. Last reply by Carolyn Morgan Sep 28. 1 Reply

I am pregnant and having big problems with constant dislocations. Did other lady's have premmie baby's???

How many people plan on having children despite their diagnosis?

Started by Mark. Last reply by Carolyn Morgan Sep 28. 59 Replies

Many of us are not aware of our diagnosis before starting a family... Out of curiosity, how many people here would still choose to have children if they had known of their Dx and likelihood of having…Continue

radiation for EDS sufferers.,

Started by Gwendolen Betty Judge Aug 18. 0 Replies

 I have cancer of the vulva and  have been advised to have 35 days  (Monday - Friday for 7 weeks) of radiation.Has anyone  with EDS ever had this treatment as I don't know how it will affect my skin,…Continue

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Timothy posted a discussion

I have EDS type 3 hypermobility can i have kids ??

I am a man and I have been giving this a lot of thought and started wondering if i will be able to have kids and also is there a test to see if i can i would just like to know thanks in advance for your answers :)See More
Nov 16
Mel mccowan posted a status
"Is there any doctors in Brisbane /Ipswich area who treat EDS ?"
Nov 8
Carolyn Morgan replied to Tonii's discussion Pregnancy how did you cope????
"I managed pregnancy fairly well joint wise but I suffered from excessive vomiting throughout each pregnancy.Labour and delivery on the other hand was much easier than most people experiance. All five of my labours were very short. My first was under…"
Sep 28
Carolyn Morgan replied to Mark's discussion How many people plan on having children despite their diagnosis?
"I believe there is a connection between "premature rupture of the membranes" (waters breaking before labour begins) and the child having Ehlers Danlos syndrome themselves as the bag of waters is made up of the child's connective…"
Sep 28
Carolyn Morgan replied to Mark's discussion How many people plan on having children despite their diagnosis?
"I believe there is a connection between "premature rupture of the membranes" (waters breaking before labour begins) and the child having Ehlers Danlos syndrome themselves as the bag of waters is made up of the child's connective…"
Sep 28
Mark posted a status
"NDIS?? Is there anything the NDIS offers for someone with EDS? I understand you can access some services but wondering if anyone has."
Sep 23

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