EDSAUS - Ehlers Danlos Syndrome Support in Australia
Aussie support for those with Ehlers-Danlos Syndrome and their families
This group is for Aussies who have Ehlers-Danlos Syndrome and their families, a place for support, information, compassion and understanding
Started by Kylie Lang Oct 27, 2022. 0 Replies 0 Likes
Update: October 2022. This support site is currently in hiatus. More news in 2023. In the meantime please refer to The Ehlers-Danlos Society for reliable information …Continue
Started by Demi. Last reply by Demi Dec 19, 2021. 2 Replies 0 Likes
Hi lovelies,I am new and was just wondering if anyone new of some good doctors and/or specialists in the Hunter Valley/Sydney areas? I was diagnosed in 2012 I wasn't told what type I have, but I have…Continue
Started by Dorothy Jul 10, 2021. 0 Replies 0 Likes
can they occur spontaneously, and why would they do this? i have had a few since i was young. theyre quite shocking, i cant understand how they would develop without some kind of external force or…Continue
Started by Freddie. Last reply by Demi Jun 8, 2021. 1 Reply 0 Likes
looking to know whether this is normal/if there could be other underlying causes:I (18) was diagnosed with hEDS about six months ago (lived relatively normally until ending up with a bout of…Continue
You are disconnected from chat. Connect to join the chat.
Sign up to chat on EDSAUS - Ehlers Danlos Syndrome Support in Australia.
© 2023 Created by Kylie Lang. Powered by